MS Progression... think I'm F*

[flagmanruss]

My Multiple Sclerosis has progressed...  about all MS is progressive...  and I am 13 years into the Secondary Phase.   This is all background.  Both legs are affected, the left side is nearly non-functional & the left arm too.  I despite my best efforts, I've had falls...   I used to bounce back up...  then I had to work to get up...   

A couple of days ago, I fell off the low stool trying to put a belt on the lawn tractor.  I really tried but in the end, I had to use my cell to get help.  I'm afraid my right (good) knee may have been injured (ACL is tender).  I have to climb stairs with my right leg (and right arm strength)...  and the same to get onto my truck step.   I seriously question if I could get into the truck today.   I just don't know where I go from here. 

 

[Me78569]

Wow I cannot imagine going through that.  I have worked with numerous people with Ms when I was working with a therapeutic riding center.

 

It was very tough to see.

[hex0rz]

My wife receives this treatment for her condition. Please look into it for yours. This link says it could treat MS.

http://www.actionsportsmedicine.com/Prolotherapy.php

[CTcummins24V]

Keep fighting, keep being active! My uncle has MS and sitting around all day doesn't help his mobility or attitude. Never, never, never give up- W. Churchill

[Wild and Free]

I truly feel for you Russ. I do not have any constructive advice other than seeing what worked for my own mother and what got her through her 40+ year fight with the disease. She was diagnosed with MS in 1970 @‌ 19 years old and passed 2.5 years ago from other issues on top of the MS.

I saw her stay extremely active and take all of her vitamins and supplements for 25 years and keep it at bay for the most part. Then my folks had a terrible split and that consumed her mentally and she gave up in a lot of ways and she took a turn for the worse from there and never could recoupe. She had the most vibrant smile and sense of humor she was known for over the years as that was her main medication, once my folks split that went away for the most part and I saw how the depression and lack of activity took its toll in a very scarey fast pace.

 

Stay as positive as possible and as hard as it may be try and stay busy and active if possible.

 

I am a firm believer in vitamin D3 deficiency as being the main culprit of MS. I take two 5,000 IU's a day. living above the 48th parallel is a main cuprit of vit D deficiency with our long winters and lack of sufficient natural sun light exposure for months on end. There are numerous studies that back this as well.

Edited October 29, 2015 by Wild and Free

[flagmanruss]

I stayed quite active 10+ years of symptoms all the way through Relapsing Remitting MS.  I was not correctly diagnosed until the major events of 2001-2 when I was transitioning to the Secondary Phase.  Here I am 13 years later...   

I spend way more time sitting than I like, these days...  I have very limited minutes I can be on my feet.  While there is nothing wrong with the muscles, the damaged nerves are like a bundle of frayed wires.  Some don't work at all (numbness), some work a little but a "high resistance joint" (nerve fatigue), some are like crossed wires (tingling, sensation like some bug is crawling on you). 

I use walls & furnature for stability...  a cane is unstab;le but sometimes necessary.  I have 2 walkers upstairs, one down, one in the car.  A big outdoor scooter, a foldup scooter that lives in my car.  (The last with a "souped up" custom LiFePO4 battery & smart charger.)   

I tore this same knee in late 2008, surgury early 09 did what could be done.  Has had a dead spot in the lift range since.  I must use a lot of right arm strength to climb stairs or to get into the truck.  One foot on a banana peel & any new injury could stop life as I know it.  

I have made an initial appt with the Orthopedic doctor.  I hate to go to the big city office but that was how to get it expedited.  I expect an MRI will be ordered...  won't know the actual damages until then.    

 

Edited October 29, 2015 by flagmanruss

[JOHNFAK]

Really sorry russ. I quite simply cant imagine. Take health so much for granted.

 

[Mopar1973Man]

I wish I could be there to help out Russ at times but there is a lot of miles between us. Like CTCummins said "Never Give Up!"

[flagmanruss]

Vitamin D has been studied...  not proven effective but indeed is low in people with MS.  I upped my dose to 2000IU daily.  (2) 5000IU daily may be over kill. 

There is research showing good preliminary results using high dose B7 (Biotin)...  not practical to do with OTC but compounded works or you can buy powder & do yourself.  100mg 3X daily.  My Neurologist has Rx for me. 

There are not any modern pharma drugs which have much effect for SP MS.  There are what as known as DMT (Disease Modifying Therapy) which can slow down but not stop MS...  in the early stage. 

I take meds to manage symptoms around the clock.      

[Wild and Free]

The thing with Vitamin D3 is there is no such thing as too much, it can not cause any issues even if taking more than necessary like some vitamins, one needs calcium along with it to help the body utilize it better too.

 

It has been proven again and again that Vitamin D3 can help prevent a lot of modern diseases the more they learn about the deficiency a lot have. Trace minerals are another thing every one need more of with our crappy food supply now having little to no nutritional value as the land producing it has been raped of all its natural nutrients and enzymes already as well which is why commercial fertilizers and chemicals need to be so highly used otherwise the land would hardly grow weeds anymore.

All comes back to the fact we as a species were never designed by nature to eat seeds from grasses AKA Grains.

[Wild and Free]